I have been having chronic headaches ever since I got hypothyroidism a few years ago. I also have had body aches, chronic fatigue, and a host of other crap that I have complained about to my doctor for a few years now.
I would return to my doctor and tell her about this stuff and that I didn't think my thyroid medicine was working because I didn't feel any better, and she would run blood tests and check my thyroid and tell me it was looking fine. She tried a couple of drugs on me that didn't do shit for my headaches, and then told me she had done all she could do and that I would have to learn to live with it.
And I did for a couple of years until I just couldn't fucking take it anymore and I returned this April and begged her to do something-anything, and she decided to send me to a pain clinic. There they diagnosed me with fibromyalgia (which they declined to tell me about) along with chronic myofascial pain (which they DID tell me about) and they began a series of nerve block injections in my head and gave me some more pills that didn't work.The injections hurt like hell but it was much better than the headaches, but unfortunately they shots would last only about 2 1/2 to 3 weeks.
So the pain clinic sent me to another pain clinic to get botox shots in my head and face because botox supposedly works better, but after I got there the doctor decided against botox, and instead prescribed an anti-seizure drug called Topamax and more nerve block injections in my head. It was around about this time that I decided to check my medical records online and found out I had been diagnosed with fibromyalgia as well back in April (it was now July). Why they didn't tell me this shit I have no clue. Maybe they were waiting for my regular doctor to tell me?
The Topamax made me sick to my stomach all the time so I asked to be taken off of it, and I also informed this pain doctor about the fibromyalgia diagnosis. So they took me off the Topamax and prescribed another anti-seizure drug called Neurontin which so far seems to be helping although I feel drowsy and drugged up all the time. I am not taking the full dose yet as you have to build up a tolerance to it, but I can tell when this shit wears off because I hurt everywhere!
My regular doctor had been treating all my symptoms separately (while secretly wondering if I was a hypochondriac-I could tell), but they ended up all being symptoms of fibromyalgia. All I know is the shit hurts and you don't want it-trust me.
So now my life consists of a never ending list of doctor appointments, injections in my head, whirlpool baths at the pain clinic, physical therapy appointments, exercises to help with my head, neck, and back, pills, headaches, and muscle pain, and trying to learn everything I can about both of these conditions-fibromyalgia and chronic myofascial pain.
Some days I hurt so bad I just find a spot that doesn't hurt too much and lie there as long as I can. And some days I don't hurt as much and I actually manage to get something done. I am trying to accept that I can't do everything that needs to be done all at once, and tying to not let it bother me when I have to let things go until I feel better. Some days I do better at that than other days too.
I never really believed in fibromyalgia
until I got it, but hell I never believed a thyroid could make you fat
either until I got hypothyroidism. But trust me-this shit will make a
believer out of you real quick. In fact, I found out that a lot of people who get hypothyroidism also get fibromyalgia.
Anywho, this is all new to me (the diagnosis, not the pain), and even though I am disappointed to have fibromyalgia I admit that I am somewhat relieved to be able to put a name to myriad list of aches, pains, and symptoms. And relieved that I am not a hypochondriac after all. It's also a relief to finally start receiving some kind of treatment instead of just sitting around "living with it". I do wish it didn't hurt so much though. I am going to do my best to not let it get the best of me by doing what ever is in my power to help myself.
Chronic myofascial pain
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